Wednesday, November 24, 2010

Ethics and Confidentiality and personal story in the third person

There is a conference presentation that has done the rounds, maybe is still doing it, where one of the slides contains a quotation from one of the "anonymous" participants in the research.

I have seen this three times now, and each time, there is a certain tension in that the presenter has indicated that the author of that comment may well be in the audience. Indeed the author of that comment has a certain linguistic style that makes it somewhat unlikely that anyone else would have expressed the same sentiment in that particular way. I don't think the author really worries about that, but he (and it is a he, since the "anonymous" does possess a pair of bollox last time I looked) does consider every time just how confidential research can be private parts notwithstanding.

The participant in question has recently been getting accustomed to writing of himself in the third person, as this is apparently proper academic procedure, but at times he does also think bollox to that and all because his research cannot possibly have originated in a situation other than the one he finds himself in, and if you follow the link to this particular authors other blog you will see the connection there.

Sometimes anonymity is not the best thing, because the personal is political (I forget who said that, nobody is perfect) and in writing up my research it is personal.

However elsewhere on the internet the researcher can be found as participant, and not as anonymous to those who know his various internet moniker, as he ought to be.

 Indeed for those who know where to look there is a complete medical history of a particular neurological syndrome including private emails.

Anyway this researcher would not actually be engaged in this endeavour at all had he been more satisfied with his experiences as a volunteer participant generally for he has figured in more than a couple of Cambridge's more well known studies, and so plays his own little part in the construction of that particular perspective on autism whether he approves of it or not. Damn it he is even using some of that research to partially ground parts of his own study. Well that is intertextuality for you.

He has helped at least one person to their doctorate and has a good feeling about that where he has been interested in the research at more than just a casual level of a trip to Cambridge and all expenses inadequately paid. The best of research has involved a couple of drinks in the pub afterwards, I am afraid that doesn't happen at Cambridge to my knowlege. I doubt it often does at Birmingham either

Well if people think (and my legal watchdogs) I am having yet another dig at Saint Simon, well perhaps I am, but not to worry if you are reading this me old pal me old beauty, I'll see you on Monday :)

And before I sign off, my emergent research is going to be interesting because it already has something not often seen in the genre, and that is a critical faculty since I will rubbish my own methods and failings in more ways than the more acquiescent reviewer is likely too, but that is the way to go isn't it?

Anonymity? Well if you are a participant reading this, unless you out yourself in the comments box, I remain true to the proper conventions, however if I ever do ever  quote you in a presentation I will ask if you would like a proper academic citation first :)


Anonymous said...

When you get to Old Posh, collect the Prof and jump on the 12A and drop-in for coffee. It's only a couple of stops.

It's about time his Holiness saw the sort of care and support his clinical colleagues are delivering just down the road.

Of course, I might just be part of a control group for one of his Ecological studies for CLAHRC - that would explain a lot.

I could get my solicitor to come too. Perhaps she might even bring the Silk she's managed to persuade to a bit of pro bono for me.

Ask him if Asif's got any new jokes, yet, but don't mention the patient that spent 2 weeks swinging from the neck from a tree in the grounds of Fulbourn...

The man's PG Wodehouse and Giles Wemmbley-Hogg all rolled into one.

It says in the latest ARC newletter "We remain indebted to our volunteers without whom progress would not be possible"

It's far more interesting finding the genes for AS than it is telling a social worker to get of their arse and fill-in a DLA form.

The author said...

I won't be in Cambridge to see 'old posh', he's coming to London for a meeting, and that's where I will be staying for a couple of days, up near the "Best Kebab shop in London" 'cept that they have a rival across the road last time I was there.

Anonymous said...

do i sound bitter?

anyway, that kebab shop's a front for al-qaeda in yemen... don't bother with the chip shop either (naples mafia) or mcdonald's (autism speaks).

take sandwiches.

The author said...

And I thought that AQ was an abbreviation for Autism Quotient, and nothing to do with Yemen or the price of fish.

You know what you have done don't you with that last post? Triggered off the spooks, who will now be monitoring my blog and turning all those street cameras on me. Maybe the street cameras will not be so bad. After all they failed to detect the guy who vandalised my landie a couple of Christmases ago.

I understand there is not likely to be an AQ incident on the tube on Monday anyway as the tube is apparently going on strike, one less thing to worry about. Well it depends, the meeting could be called off.

Trouble is that AQ are not the only ones we have to worry about, there is always the Irish lot who used to be rather more efficient than these other Johnny come lately Johnny foreigners. I've come closer to being blown up by the Irish than I ever have by the Arabs, I was within minutes of an IRA bomb, I have only been in London on the same day as an AQ one, which was bad enough.